With your help over the past four years, we’ve been able to get $17 million dedicated to MS Research through the Defense Department’s Congressionally Directed Medical Research Programs (CDMRP) . This week the House of Representatives is scheduled to vote on the FY 2012 Defense Appropriations bill that includes an additional $3.8 million for MS Research. There may be efforts to reduce or completely eliminate CDMRP and lose the momentum of the cutting edge research underway. It is important that you act now to urge your Representative to continue funding for the CDMRPs!
Emerging evidence indicates a potential link between combat service and an increased incidence of MS, with one study theorizing that exposure to neurotoxins could be an environmental trigger for MS. According to a 2003 study in the Annals of Neurology, 5,345 veterans that served in Vietnam and the first Gulf War were diagnosed with MS that was deemed "service-connected." MS research in the CDMRP helps scientists better understand the causes of MS and can help us discover a cure.
Contact your Representative today and remind them of the importance of maintaining these programs that could lead to better treatments for MS in the future!
Tuesday, June 21, 2011
Friday, June 17, 2011
Invitation to Participate in Housing Needs Survey
National MS Society, Greater New England Chapter to me
show details 9:45 AM (34 minutes ago)
Images are not displayed.
Display images below - Always display images from Linda.Guiod@nmss.org
Email not displaying correctly? View it in your browser.
JOIN THE MOVEMENT
Dear Friend of the National MS Society, Greater New England Chapter:
THIS IS A REMINDER TO COMPLETE OUR SURVEY REGARDING THE HOUSING NEEDS OF PEOPLE WITH MULTIPLE SCLEROSIS. IF YOU HAVE DIFFICULTY ACCESSING THE SURVEY ON LINE, AND WOULD LIKE A HARD COPY TO COMPLETE AND RETURN, PLEASE REPLY TO THIS EMAIL AND LET US KNOW. IF YOU HAVE ALREADY COMPLETED THE SURVEY EITHER ON LINE OR HARD COPY, THANK YOU FOR YOUR RESPONSE. PLEASE DO NOT COMPLETE IT A SECOND TIME.
Thank you!
We are very excited to announce that we are beginning a movement to answer your needs for accessible independent housing. As you are aware, we take pride in listening to your concerns and then work diligently for you, our friends who have MS. The awareness of these needs has led the Chapter to partner with other interested organizations and to explore the development of housing alternatives.
To learn more about the needs of people who live with MS everyday, we have developed a survey and we ask for your participation. This will add to our understanding of issues that have been reported in previous surveys that you and others have completed. Your answers will provide us with information about the many needs and desires regarding appropriate housing arrangements for people who are disabled from the effects of MS. Your input is valuable and we look forward to tabulating the results and sharing it with funding resources, government agencies and partnering organizations in moving toward our goal of providing housing opportunities.
Please know that this survey is confidential and at this time we cannot guarantee housing. This is our first step in assessing the housing needs of people who live with MS of all income levels. This information is absolutely crucial in our efforts to influence state and federal funding sources to help create housing.
Certainly, as the Chapter moves forward with any housing plans, we will contact those that have completed this survey. You may access the survey via the following link:
http://www.nationalmssociety.org/MAMHousingSurvey
The deadline for participation is JULY 15, 2011. If you prefer, we can send you a hard copy of the survey to complete and return via US Mail. Please call me to receive the printed version or if you have any questions. Thank you for taking the time to help us to collect the information we need about the housing needs of people with MS.
Sincerely,
Linda R. Guiod, RN, MSSMC
National MS Society, Greater New England Chapter
101 A First Ave.
Waltham, MA 02451
781.693.5124
show details 9:45 AM (34 minutes ago)
Images are not displayed.
Display images below - Always display images from Linda.Guiod@nmss.org
Email not displaying correctly? View it in your browser.
JOIN THE MOVEMENT
Dear Friend of the National MS Society, Greater New England Chapter:
THIS IS A REMINDER TO COMPLETE OUR SURVEY REGARDING THE HOUSING NEEDS OF PEOPLE WITH MULTIPLE SCLEROSIS. IF YOU HAVE DIFFICULTY ACCESSING THE SURVEY ON LINE, AND WOULD LIKE A HARD COPY TO COMPLETE AND RETURN, PLEASE REPLY TO THIS EMAIL AND LET US KNOW. IF YOU HAVE ALREADY COMPLETED THE SURVEY EITHER ON LINE OR HARD COPY, THANK YOU FOR YOUR RESPONSE. PLEASE DO NOT COMPLETE IT A SECOND TIME.
Thank you!
We are very excited to announce that we are beginning a movement to answer your needs for accessible independent housing. As you are aware, we take pride in listening to your concerns and then work diligently for you, our friends who have MS. The awareness of these needs has led the Chapter to partner with other interested organizations and to explore the development of housing alternatives.
To learn more about the needs of people who live with MS everyday, we have developed a survey and we ask for your participation. This will add to our understanding of issues that have been reported in previous surveys that you and others have completed. Your answers will provide us with information about the many needs and desires regarding appropriate housing arrangements for people who are disabled from the effects of MS. Your input is valuable and we look forward to tabulating the results and sharing it with funding resources, government agencies and partnering organizations in moving toward our goal of providing housing opportunities.
Please know that this survey is confidential and at this time we cannot guarantee housing. This is our first step in assessing the housing needs of people who live with MS of all income levels. This information is absolutely crucial in our efforts to influence state and federal funding sources to help create housing.
Certainly, as the Chapter moves forward with any housing plans, we will contact those that have completed this survey. You may access the survey via the following link:
http://www.nationalmssociety.org/MAMHousingSurvey
The deadline for participation is JULY 15, 2011. If you prefer, we can send you a hard copy of the survey to complete and return via US Mail. Please call me to receive the printed version or if you have any questions. Thank you for taking the time to help us to collect the information we need about the housing needs of people with MS.
Sincerely,
Linda R. Guiod, RN, MSSMC
National MS Society, Greater New England Chapter
101 A First Ave.
Waltham, MA 02451
781.693.5124
Thursday, June 16, 2011
MSConnection Summer 2011
Table of Contents — Summer 2011 Issue
MileStones 2011 David Osmond
MileStones Gala 2011 was capped off by a performance from David Osmond, who was diagnosed with MS in 2006.
Features
Accessible Vacation Rentals at Last…
2011 Scholarship Awards
Milestones Awards
News
From The President
Work Toward Your Best Life with MS
Programs
2011 Scholarship Recipients
Invitation to Participate in Housing Needs Survey
Programs
Maine
Massachusetts
New Hampshire
Vermont
Program Highlights
Living with MS
Save-the-Date
Recent Additions to the Dora Lipcon Lending Library
Research
Research Advocate
Resources to Find Clinical Trials
$17.5 Million for 50 New MS Research Projects
Advocacy
Federal Updates
State Updates
Maine
Massachusetts
New Hampshire
Vermont
Volunteers
Passionate People = Productivity
Fundraising
Bike MS Season Starts Strong!
The Golden Circle
Journey of Hope 2011
Accept the Challenge
Link Up for MS
Walk with Us This Fall 2011
30th Annual MS Harborfest
Calendar of Events - see current calendar
Classified Ads - see current listings
MileStones 2011 David Osmond
MileStones Gala 2011 was capped off by a performance from David Osmond, who was diagnosed with MS in 2006.
Features
Accessible Vacation Rentals at Last…
2011 Scholarship Awards
Milestones Awards
News
From The President
Work Toward Your Best Life with MS
Programs
2011 Scholarship Recipients
Invitation to Participate in Housing Needs Survey
Programs
Maine
Massachusetts
New Hampshire
Vermont
Program Highlights
Living with MS
Save-the-Date
Recent Additions to the Dora Lipcon Lending Library
Research
Research Advocate
Resources to Find Clinical Trials
$17.5 Million for 50 New MS Research Projects
Advocacy
Federal Updates
State Updates
Maine
Massachusetts
New Hampshire
Vermont
Volunteers
Passionate People = Productivity
Fundraising
Bike MS Season Starts Strong!
The Golden Circle
Journey of Hope 2011
Accept the Challenge
Link Up for MS
Walk with Us This Fall 2011
30th Annual MS Harborfest
Calendar of Events - see current calendar
Classified Ads - see current listings
Friday, June 3, 2011
Invitation to Participate in Housing Needs Survey
Dear Friend of the National MS Society, Greater New England Chapter:
We are very excited to announce that we are beginning a movement to answer your needs for accessible independent housing. As you are aware, we take pride in listening to your concerns and then work diligently for you, our friends who have MS. The awareness of these needs has led the Chapter to partner with other interested organizations and to explore the development of housing alternatives.
To learn more about the needs of people who live with MS everyday, we have developed a survey and we ask for your participation. This will add to our understanding of issues that have been reported in previous surveys that you and others have completed. Your answers will provide us with information about the many needs and desires regarding appropriate housing arrangements for people who are disabled from the effects of MS. Your input is valuable and we look forward to tabulating the results and sharing it with funding resources, government agencies and partnering organizations in moving toward our goal of providing housing opportunities.
Please know that this survey is confidential and at this time we cannot guarantee housing. This is our first step in assessing the housing needs of people who live with MS of all income levels. This information is absolutely crucial in our efforts to influence state and federal funding sources to help create housing.
Certainly, as the Chapter moves forward with any housing plans, we will contact those that have completed this survey. You may access the survey via the following link:
Housing Survey
The deadline for participation is JULY 15, 2011. If you prefer, we can send you a hard copy of the survey to complete and return via US Mail. Please call me to receive the printed version or if you have any questions. Thank you for taking the time to help us to collect the information we need about the housing needs of people with MS.
Sincerely,
Linda R. Guiod, RN, MSSMC
National MS Society, Greater New England Chapter
101 A First Ave.
Waltham, MA 02451
We are very excited to announce that we are beginning a movement to answer your needs for accessible independent housing. As you are aware, we take pride in listening to your concerns and then work diligently for you, our friends who have MS. The awareness of these needs has led the Chapter to partner with other interested organizations and to explore the development of housing alternatives.
To learn more about the needs of people who live with MS everyday, we have developed a survey and we ask for your participation. This will add to our understanding of issues that have been reported in previous surveys that you and others have completed. Your answers will provide us with information about the many needs and desires regarding appropriate housing arrangements for people who are disabled from the effects of MS. Your input is valuable and we look forward to tabulating the results and sharing it with funding resources, government agencies and partnering organizations in moving toward our goal of providing housing opportunities.
Please know that this survey is confidential and at this time we cannot guarantee housing. This is our first step in assessing the housing needs of people who live with MS of all income levels. This information is absolutely crucial in our efforts to influence state and federal funding sources to help create housing.
Certainly, as the Chapter moves forward with any housing plans, we will contact those that have completed this survey. You may access the survey via the following link:
Housing Survey
The deadline for participation is JULY 15, 2011. If you prefer, we can send you a hard copy of the survey to complete and return via US Mail. Please call me to receive the printed version or if you have any questions. Thank you for taking the time to help us to collect the information we need about the housing needs of people with MS.
Sincerely,
Linda R. Guiod, RN, MSSMC
National MS Society, Greater New England Chapter
101 A First Ave.
Waltham, MA 02451
Wednesday, June 1, 2011
Urge Your Senators to Support MS Research
A few weeks ago, MS activists helped garner support in the U.S. House of Representatives for MS research funding in the Congressionally Directed Medical Research Programs (CDMRP). In just a few short days, MS activists sent over 1,700 emails to Capitol Hill and in response, 50 members of the House signed on to a bipartisan letter circulated by Representatives Michael Burgess, M.D. (TX-26) and Russ Carnahan (MO-3).
This week, MS activists must take quick action again--this time, to urge your Senators to support funding for MS research in the CDMRP. Senators Sheldon Whitehouse (RI) and Mike Johanns (NE) have circulated a bipartisan Dear Colleague letter on the Senate side. The deadline is next Monday, so take action today and urge your Senators to support this vital programmatic request for MS research!
Emerging evidence indicates a potential link between combat service and an increased incidence of MS, with one study theorizing that exposure to neurotoxins could be an environmental trigger for MS. According to a 2003 study in the Annals of Neurology, 5,345 veterans that served in Vietnam and the first Gulf War were diagnosed with MS that was deemed "service-connected." MS research in the CDMRP helps scientists better understand the causes of MS and can help us discover a cure.
This week, MS activists must take quick action again--this time, to urge your Senators to support funding for MS research in the CDMRP. Senators Sheldon Whitehouse (RI) and Mike Johanns (NE) have circulated a bipartisan Dear Colleague letter on the Senate side. The deadline is next Monday, so take action today and urge your Senators to support this vital programmatic request for MS research!
Emerging evidence indicates a potential link between combat service and an increased incidence of MS, with one study theorizing that exposure to neurotoxins could be an environmental trigger for MS. According to a 2003 study in the Annals of Neurology, 5,345 veterans that served in Vietnam and the first Gulf War were diagnosed with MS that was deemed "service-connected." MS research in the CDMRP helps scientists better understand the causes of MS and can help us discover a cure.
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About Me
- Steve
- North Grafton, Massachusetts, United States
- Well-educated, disabled at this point with Multiple Sclerosis. I am very glad that I was able to do the things that I have been able to do over the years. had to change the picture, this one's more realistic.